Weather

Today is a cold day here. I woke up in pain this morning my knee's playing up. When i came in to the living room i was cheered up to see the christmas tree always lovely! Then opened my advent calander yummy. I go to my dads on a sunday for lunch i always have. For the first time ever i could get to the table this week, my dads house is a big old house and its always cold my brother doesn't help having his windows open! Anyway so i sat and ate my lunch on the sofa with my brother nice as always crn't beat a sunday lunch. Its just cold though my joints are really playing up. I came home lay on the sofa watched the FA cup draw my teams both have derby's so should be a rather interesting weekend to say the lease. I ended up fast asleep and woke uop about an hour later. The fatigue got me.

Its strange but many suffers say they can tell when the weather is bad or there's rain because there joints play up. I have had a bad week over all and guess what the weather has been bad and cold all week! Hopefully things will be better next week.

Book

Since i started this blog a few months back i have had an amazing response from so many people. I have come to understand that my blog in many ways is helping none suffers understanding of this condition but also suffers are enjoying it, it's seemingly affecting a lot of people.

I have ben asked by a lot of people if i would consider turning this in to a book by many people and i have decided that i will do, i'll continue bloging but will put my story into a book.

Thank you everyone x

lads n me

im a 26 year old women, i have feelings i want to achieve so much more than i currently am but rheumatoid has got me in its grips and its trying to beat me and its trying but i'm still fighting im fighting you rheumatoid you hear me?

The worse thing for me is feeling like i'll never have some one special again, ive loved before i know that feeling the butterflies. I'm not so confident these days because of the wheelchair. I have rheumatoid tho im still the same person, im in pain daily i get a bit grumpy some times but im still me.

It hurts when people say "i couldn't be with some one with RA" Well why the heck not hey whats wrong with me? i still got the personality you like, i still got the smile .. im not saying im good looking im just saying i am still me. I am still vicky i am still a person with feelings. Think before you speak.

Oh and RA wont stop me one day ill find some one special until then i'll just be me.

why?

i often sit and wonder why me? why have i got this? why crnt i go back to not having rheumatoid. but i crnt go bk only forward. when people say what they are up to i get upset because i use to do that to.

why im single after 10 years .. why i guess its my rheumatoid ive loved in the past .. ive liked ive fancied but i dout ill ever experience love again because im different now i have rheumtaoid and this condition is hard for any one to deal with .. cuz i my self crnt accept it so how can any one else try and understand life with it?

my dad said to me a few weeks a go "men like to protect you from pain and they crnt protect you so it hurts them"

some one said "friends will stand by you because they no your still vicky"

who am i ..

• fun loving
• flirt - yes i am!
• out going
• talkative

ive got my problems but im still vicky..

proud to be me with my battle scares badge of honour .. rheumatoid suffer .. tof surviver

What is Rheumatoid Arthritis

I get asked this a lot from many different people so i thought i'd tell you in my words.

Rheumatoid arthritis is a chronic, disabling auto-immune condition. My body is at war with its self, my white blood cells attack my joints because they think they are foreign to my body, just like a cold! How does it affect me, i have hot joints you can feel the heat through my clothes, my joints are inflammed and red because of the activity in the joint. Other affects insomnia i can never sleep but also fatigue its a pain i often have afternoon naps at 26! When i'm fatigued i can sleep 15+ hours a day! It is extreamly painful i like in constant pain every day.

Most common joints affected - hands, feet and wrists.

3 times more women get rheumatoid arthritis

in the morning im stiff it can take an hour to get up because im really stiff my joints are painful as they havn't been used over night.

basic facts .. in my words

Dreams can come true

This blog is simply about my dream in life. I'm 26 years old right now. When i was younger i had a dream that dream was to be trained in law and practise. I did my A Levels and then i got in to university on the south coast it was proudest moment i had gotten into law school i was following my dream. Then a life changing event happened and my dream was shattered, i always hoped one day i'd grow strong enough to return and achieve my dream. I tried again but then my mum got sick and i still didnt trust the system. So i left it and i watched my university year graduate i saw them turn in to solicitors and barristers and i am so proud of them.

With my rheumatoid came on i though i'd never go back to my passion my hobby, because of the hard work and the mental pressure and with rheumatoid it is hard. but you know what ive been bothering my self about it recently since i started my teaching training.

I AM FOLLOWING MY DREAM i'm going back im going to graduate despite the rheumatoid, you can still achieve your dreams it may be harder and take longer but never give up on your dreams

x

Moving forward

Today has been a long day i had 3 appointments and luckily i was able to attend all of them. My reiki as always was fantastic although im sure my couisin is getting to good with contacting the angels!

Had a breakthrough today with my food i had Pasta for the first time in years and yum yum it tasted good after the inital panic! Really proud of myself, pats one self on the back, its been a tough ride but hey there is some light!

The main news today is i have decided to hold a huge meeting with my care and support team literally everyone! There will be a lot of people there with a lot of opinions i am sure of that. One thing i know is i have to create some information of Rheumatoid Arthritis from MY view how it affects me. Whats the main aim of the meeting simple really to get the support team working together to help me. I know some may think wow shes brave and yeah i think so to, i'll be in a room with a lot of people who want to help me but all have different views and ways of helping me. Surely though by me doing this it can only help me. I hope it goes well! I am taking my couisin from my family moral support! She can also say how Reiki helps me.

So tonight i have wrote my letters and so this can be posted in the coming days so hopefully every one can make it. Ive also started on a presentation now maybe it is me but it's already 6 slides long and i have hardly started!

I shall keep you up dated on my progress maybe even share a slide of my powerpoint presentation the fact of Rheumatoid.

For now though i'll leave it there.

x