A short blog tonight just to explain a few things:
over the next week you will see posts by others i will of course say who they are by. To give people an insight into living with CHD, RA and other life long conditions, i hope it will raise some awareness. You may alsop see posts from people who are in the lives of suffers so you get an extra view. I hope you enoy these stories.
xx
Tuesday, 8 April 2014
Saturday, 5 April 2014
The past six LONG years
Its been a very long journey to now, 6 lond years, of pain, heartach, suffering and loss. Now im not talking about "loss" just about my wonderful mum but also the loss of my former self, of my independance of my mobility, its been a tough ride. But i believe that now im fighting BACK!!!
Now this fight back wouldnt be possible with out my medical team, Lynn, Prof buckley, Alison, Prof Deansfield, Fiona, Julie, June and my doctors at the surgery paricularly Dr southall, dr leci, dr pryke and Dr law .. wothout all these people i dont know where id be.
So firstly i STOOD up yup on my own 2 legs my strength is regaining which is so fantastic there is still hope, my knee still has give the fight is not yet to get me on my own two feet, i wanna be dancing with pals again!!
But you know i am eternally thankful to my team and i always will be because they have kept faith in me and kept with me through some of the darkest days of my life.
My family, without them by my side it would have not been possible, my lovely cousins my aunties, uncles, my brother for coming out with his big sister and of course my dad. But although the girls are only young they have kept me going when ive needed a smile or when ive needed a reason to keep fighting i just looked at therw faces and it gave me that kick ive needed to keep going.
Then we reach probably the most important people My friends now i am probably going to go on a bit here so i really do apologise in advance.
Firstly i want to mention my CHD community, thank you for being there for me, through the tough times through the scares thought the unknown, to learning more about TOF after my mum passed away you were there for me i thank each and every one of you from the bottom of my heart. When i see us adult CHD's keep going and i see you getting married, having babies, achieving dreams, supporting each other it makes me smile knowing you all such good people xx
My Rheumatoid community the last 6 years have been totally mad for me but uve been there through thick and thin cheering me on showing your love and support an arm around my shoulder, knowing ur there has helped me over come so very much. Watching you all adapt at different ratws to rheumatoid makes me proud to know you all youve acvhieved so much. We are a crazy lot (i mean this in the nicest way!) but we have fun we laugh we joke but above all we are there for each other to cry on each other shoulders, to celebrate the milestones even if its a snall and igsignificate we know how significate it is to US. I am so proud of you all and love you guys loads xxx
Now we move to some SPECIAL mentuions from my life,grab a tissue you might need it!!!
Firsty up KATY, the past six years have been tough for us both but we are still here smiling and even buying clothes! I am so proud of you for everything youve achieved and everything youve been through your still smiling and going i know its hard but im always here for you. Your wee man is such a credit to you. We meet in 2004 in A2 Law whos have though 10 years on we'd still be friends and id writting about you in my blog! Whod have thought id even have a blog!! Thank you from the bottom of my heart for sticking with me through the good and the bad times, i know it crnt have been easy seeingf you friend going from walking and off on her travels every week to in a wheelchair but youve stuck by me and i thank you so much your a true friend xxxxx
CLAIRE, wow can you believe its been 6 years since we met? i still remember that conversation so whats wrong with you, i got chd and you had CD and i was like ah and thats been us ever since! We have had some fantastic times together, laughs and everything else! Lol shopping too! you could have walked away when i got worse in the early years of rheumatoid and eventually ending up in the wheelchair buy you didnt you stuck by me and we have still had lots of laughs! LOL snow and olly still makes me chuckle!! Thank you from the bottom of my heart for always been there day or night, good and bad, walking and wheelchair and we both saw the olympics we said we would back in the planning stage! What am amazing adventure we have been on thanks again for being such a true friend xxxx
Joanna, we meet because of rheumatoid and im so glad we meet because uve have truely been there for me through some good and bad times and uve kicked me up the ass when ive needed it, uve positivly kicked my teams ass too, your a legend mate. Thank you for pushing me through France and showing me such a good time and introducing me to french cheese and wine haha!! I was and still am so proud of you for climbing killi you are such a brave women and you inspire me every day to keep going and fight my demons. Thank you for being a true friend xxx
Sam, what can i say about me and you!! Its been a long and exciting journey! We met back in 2002 12 years ago! We have been through so much, good and bad times, we always know just when we need each other, how to make each other smile in the bad times! i will never forget your face on the London eye it still makes me chuckle! Or the time a guy in London a statue was slapping people and u said if he touches my bum im sat here laughing at the very thought. I know its not been easy for you seeing me go through the last 6 years in particular but uve been there i can not express just how much i appreciate the fact uve stuck by my side, your my longest friend and ill always luv you and think of you as my bestie, even if you do support Arsenal!!! Thanks for everything xxxx
I can not physically name all my female friends but please know i love you all and appreciate you sticking by me in the good and bad times, i mentioned the four above for speical reasons, i mean after 12 and 10 years they do deserve a special mentione lol.
Now on the the boys!! Oh man this is going to be hard so many diamonds in my heart!!! Here goes!!!
Mark, here goes! We met on twitter of all places!! We have known each other a while now and guess what we met over, a manchester united shirt! We both shared a picture of our new white shirts and that was in we havnt not talked since!! We have laughed, cried, had arguments about manchester united and birmingham city together! My fav memory of me and you was going to Old Trafford i was so pleased i could take you and make you dream come true it warmed my heart, even though i have the wheelchair you pushed and didnt moan! You have stuck by me through the good times amd the bad times weve had a lot of laughs and uve really helped me when ive had no one else to talk to you were there like a true friend. Im well excited for your first gig in May, i hope we have many more good times together, your a true friend and never forget im here for you xxx
Duncan, what can i say? the last two years have been a rollercoaster, we have laughed, weve cried, weve celebrated weve cursed too!! We have had some fantastic times! me gettuing you on a walk round the grove in 30c heat lol you didnt moan though and i supplied the drink and ice cream! we have talked for hours weve sent millions of texts lol. we danced in manchester and we both got drunk. But through out everything we have always been there for each other through everything stood side by side, always got each others back. i know you know that i will always be here for you no matter how im feeling. I know i can always ring you/. text you just for a chat. We just clicked 2 years ago clearly cuz we are both awesome! Thank you in all seriousness for being there through the good and the bad times, and heres to some more adventures in Manchester!! Your a true friend and ill always be here for you and i know your always there for me xxx
Mike, short and sweet you are an absolute legend, you make me laughm you cheer me up and you make me smile. we have talked loads and i just wanted to thank you for alwsys being there, You umnderstand me on a level others dont and i thank you for that. Thank you for sticking by me. Im always here for you mile always never forget that. xxx
There are so MANY other people i should and could mention but my hands are hurting and my eyes are red from crying. You know who you are if you not mentioned by name i thank you from the bottom of my heart i thank you for your friendship for stticking by me.
For now im signing the last word can only go to a few people Sam thanka for puttinf up with me for the past 12 years its been eventful lol! Katy rememeber keep smiling things can only get better, claire lets have more fun. Mark thanks for being you, duncan always here for you forever and mike lets keep smiling :) xxx
love to you all xxxxxxxx
Now this fight back wouldnt be possible with out my medical team, Lynn, Prof buckley, Alison, Prof Deansfield, Fiona, Julie, June and my doctors at the surgery paricularly Dr southall, dr leci, dr pryke and Dr law .. wothout all these people i dont know where id be.
So firstly i STOOD up yup on my own 2 legs my strength is regaining which is so fantastic there is still hope, my knee still has give the fight is not yet to get me on my own two feet, i wanna be dancing with pals again!!
But you know i am eternally thankful to my team and i always will be because they have kept faith in me and kept with me through some of the darkest days of my life.
My family, without them by my side it would have not been possible, my lovely cousins my aunties, uncles, my brother for coming out with his big sister and of course my dad. But although the girls are only young they have kept me going when ive needed a smile or when ive needed a reason to keep fighting i just looked at therw faces and it gave me that kick ive needed to keep going.
Then we reach probably the most important people My friends now i am probably going to go on a bit here so i really do apologise in advance.
Firstly i want to mention my CHD community, thank you for being there for me, through the tough times through the scares thought the unknown, to learning more about TOF after my mum passed away you were there for me i thank each and every one of you from the bottom of my heart. When i see us adult CHD's keep going and i see you getting married, having babies, achieving dreams, supporting each other it makes me smile knowing you all such good people xx
My Rheumatoid community the last 6 years have been totally mad for me but uve been there through thick and thin cheering me on showing your love and support an arm around my shoulder, knowing ur there has helped me over come so very much. Watching you all adapt at different ratws to rheumatoid makes me proud to know you all youve acvhieved so much. We are a crazy lot (i mean this in the nicest way!) but we have fun we laugh we joke but above all we are there for each other to cry on each other shoulders, to celebrate the milestones even if its a snall and igsignificate we know how significate it is to US. I am so proud of you all and love you guys loads xxx
Now we move to some SPECIAL mentuions from my life,grab a tissue you might need it!!!
Firsty up KATY, the past six years have been tough for us both but we are still here smiling and even buying clothes! I am so proud of you for everything youve achieved and everything youve been through your still smiling and going i know its hard but im always here for you. Your wee man is such a credit to you. We meet in 2004 in A2 Law whos have though 10 years on we'd still be friends and id writting about you in my blog! Whod have thought id even have a blog!! Thank you from the bottom of my heart for sticking with me through the good and the bad times, i know it crnt have been easy seeingf you friend going from walking and off on her travels every week to in a wheelchair but youve stuck by me and i thank you so much your a true friend xxxxx
CLAIRE, wow can you believe its been 6 years since we met? i still remember that conversation so whats wrong with you, i got chd and you had CD and i was like ah and thats been us ever since! We have had some fantastic times together, laughs and everything else! Lol shopping too! you could have walked away when i got worse in the early years of rheumatoid and eventually ending up in the wheelchair buy you didnt you stuck by me and we have still had lots of laughs! LOL snow and olly still makes me chuckle!! Thank you from the bottom of my heart for always been there day or night, good and bad, walking and wheelchair and we both saw the olympics we said we would back in the planning stage! What am amazing adventure we have been on thanks again for being such a true friend xxxx
Joanna, we meet because of rheumatoid and im so glad we meet because uve have truely been there for me through some good and bad times and uve kicked me up the ass when ive needed it, uve positivly kicked my teams ass too, your a legend mate. Thank you for pushing me through France and showing me such a good time and introducing me to french cheese and wine haha!! I was and still am so proud of you for climbing killi you are such a brave women and you inspire me every day to keep going and fight my demons. Thank you for being a true friend xxx
Sam, what can i say about me and you!! Its been a long and exciting journey! We met back in 2002 12 years ago! We have been through so much, good and bad times, we always know just when we need each other, how to make each other smile in the bad times! i will never forget your face on the London eye it still makes me chuckle! Or the time a guy in London a statue was slapping people and u said if he touches my bum im sat here laughing at the very thought. I know its not been easy for you seeing me go through the last 6 years in particular but uve been there i can not express just how much i appreciate the fact uve stuck by my side, your my longest friend and ill always luv you and think of you as my bestie, even if you do support Arsenal!!! Thanks for everything xxxx
I can not physically name all my female friends but please know i love you all and appreciate you sticking by me in the good and bad times, i mentioned the four above for speical reasons, i mean after 12 and 10 years they do deserve a special mentione lol.
Now on the the boys!! Oh man this is going to be hard so many diamonds in my heart!!! Here goes!!!
Mark, here goes! We met on twitter of all places!! We have known each other a while now and guess what we met over, a manchester united shirt! We both shared a picture of our new white shirts and that was in we havnt not talked since!! We have laughed, cried, had arguments about manchester united and birmingham city together! My fav memory of me and you was going to Old Trafford i was so pleased i could take you and make you dream come true it warmed my heart, even though i have the wheelchair you pushed and didnt moan! You have stuck by me through the good times amd the bad times weve had a lot of laughs and uve really helped me when ive had no one else to talk to you were there like a true friend. Im well excited for your first gig in May, i hope we have many more good times together, your a true friend and never forget im here for you xxx
Duncan, what can i say? the last two years have been a rollercoaster, we have laughed, weve cried, weve celebrated weve cursed too!! We have had some fantastic times! me gettuing you on a walk round the grove in 30c heat lol you didnt moan though and i supplied the drink and ice cream! we have talked for hours weve sent millions of texts lol. we danced in manchester and we both got drunk. But through out everything we have always been there for each other through everything stood side by side, always got each others back. i know you know that i will always be here for you no matter how im feeling. I know i can always ring you/. text you just for a chat. We just clicked 2 years ago clearly cuz we are both awesome! Thank you in all seriousness for being there through the good and the bad times, and heres to some more adventures in Manchester!! Your a true friend and ill always be here for you and i know your always there for me xxx
Mike, short and sweet you are an absolute legend, you make me laughm you cheer me up and you make me smile. we have talked loads and i just wanted to thank you for alwsys being there, You umnderstand me on a level others dont and i thank you for that. Thank you for sticking by me. Im always here for you mile always never forget that. xxx
There are so MANY other people i should and could mention but my hands are hurting and my eyes are red from crying. You know who you are if you not mentioned by name i thank you from the bottom of my heart i thank you for your friendship for stticking by me.
For now im signing the last word can only go to a few people Sam thanka for puttinf up with me for the past 12 years its been eventful lol! Katy rememeber keep smiling things can only get better, claire lets have more fun. Mark thanks for being you, duncan always here for you forever and mike lets keep smiling :) xxx
love to you all xxxxxxxx
Its been a while!!!
Well i havnt blogged since Feb but ive just seen ive reached 10,500 readers WOW thank you so much for staying with me ad my blog its been a long journey!
So whats happened since i last blogged .. well major event i turned 29!! To think i started this blog when i was 26 wow so much has happened in that time its been fun sharing it with you all, i kind of find my blog theroputic, i know sounds a bit crazy but it does.
For mty 29th i had a great day out with my cousin uncle and the girls at Thomas land had such a laugh and loved seeing the girls so excited about the rides it was lovely, then out for food and drinks in the evening which was nice. I was worried id be srtuck on my own but i wasnt and that was great.
The other major event since i last blogged is MANCHESTER!!
Well that was a mad one!! I went to the maximo park gig with friends. We laughed listened to great music had a wonder round town, i even got talking to a nice guy in a pub! i got a bit drunk lol but thats ok cuz i had a great time! Was lovely to spend time with duncan and have a chat!
i can not wait to go back to manchester!! Loads comimg up im off to the sunshine concert in London with my cousin and seeing mcbusted with a friend then back to manchester for a bank holiday mash up with Mark, Duncan, Eric and Duncan's friend Toni. Really looking forward to throwing down my hair and dancing and drinking lots of vodka oh and seeing the bands going to be a good one!!
xx
So whats happened since i last blogged .. well major event i turned 29!! To think i started this blog when i was 26 wow so much has happened in that time its been fun sharing it with you all, i kind of find my blog theroputic, i know sounds a bit crazy but it does.
For mty 29th i had a great day out with my cousin uncle and the girls at Thomas land had such a laugh and loved seeing the girls so excited about the rides it was lovely, then out for food and drinks in the evening which was nice. I was worried id be srtuck on my own but i wasnt and that was great.
The other major event since i last blogged is MANCHESTER!!
Well that was a mad one!! I went to the maximo park gig with friends. We laughed listened to great music had a wonder round town, i even got talking to a nice guy in a pub! i got a bit drunk lol but thats ok cuz i had a great time! Was lovely to spend time with duncan and have a chat!
i can not wait to go back to manchester!! Loads comimg up im off to the sunshine concert in London with my cousin and seeing mcbusted with a friend then back to manchester for a bank holiday mash up with Mark, Duncan, Eric and Duncan's friend Toni. Really looking forward to throwing down my hair and dancing and drinking lots of vodka oh and seeing the bands going to be a good one!!
xx
Sunday, 9 February 2014
Somerset flood
Now firstly I'm in the mist of a terrible hand flare, thanks to the awful weather we are experiencing here but I had to write this piece through pain.
As a youngster I spent many happy holidays on the south west coast in Somerset, it holds such lovely memories of both my mum and grandad who have both passed away. The one holiday we were all together in brean my uncles aunty cousins and grandparents.
But as I write this the beautiful area if being hammered by flooding ruining people's lives, communities cut off life will not be the same. I hope it can be cleaned up and tourism this summer can give them financial support to rebuild and help those affected, they are proud people of course they want help but they also want to help them selfs too.
Secondly I'd like to congratulate prince Charles on his recent visit to Somerset and providing funding to help the area.
My thoughts are with everyone in Somerset and I hope that this weather Improves and you get the support you need to get your communities sorted and strong again. I also hope the farmers can come through this natural disaster.
Xx
As a youngster I spent many happy holidays on the south west coast in Somerset, it holds such lovely memories of both my mum and grandad who have both passed away. The one holiday we were all together in brean my uncles aunty cousins and grandparents.
But as I write this the beautiful area if being hammered by flooding ruining people's lives, communities cut off life will not be the same. I hope it can be cleaned up and tourism this summer can give them financial support to rebuild and help those affected, they are proud people of course they want help but they also want to help them selfs too.
Secondly I'd like to congratulate prince Charles on his recent visit to Somerset and providing funding to help the area.
My thoughts are with everyone in Somerset and I hope that this weather Improves and you get the support you need to get your communities sorted and strong again. I also hope the farmers can come through this natural disaster.
Xx
Monday, 3 February 2014
A trip of a lifetime .. time zones and all
U.S.A
Now ever since i was knee high i always said "im going to travel mum" and she always said i have no doubt you will, because once i set my mind to something i will get there. Now i had a couple of opportunities to do a world trip but for different reasons, mainly academic, i didnt go. then i got rheumatoid then i got the wheelchair accessory, i thought im never going to forfill my dreams, then i thought hey who you talking to vicky, a defeatist or yourself!
Last year in 2013, i traveled to the cannary islands, a place thats never been on my rador before now however i love the place home from home! Then of course i forfilled a life time dream to visit france, i know crazy right? just one place ive always wanted togo to! I hope to go back to france and explore more of the country and met lots of lovely french people! I have many other european countries to tick off my travel bucket list, its quite extensive! Seeing a camal in May 2013 well i almost ekked with excitment new experiences. Dont get me wrong the UK ius beautiful, England, Scotland, ireland and wales too, beautiful places to visit and you can not beat a sunny day walking along the themes or a cold winters night under the lights of old trafford!
But this summer (as long as my last health check 1 week before travel fit to fly) i am going to conqur my BIGGEST adventure yet i am going to visit AMERICA!!! (i heard those screams!!)
Now i have ALWAYS wanted to visit New York and unfortunatly this trip wont allow me to explore unless you count the 6 hours houled up in JFK airport waiting for my flight home to the UK! I will travel many time zones!!! British summer time, Eastern time (+5), Central Time (+6) and Pacific time (+8).
I have met some wonderful people through my heart and rheumatoid groups with facebook, unfortunatly i wont manage to visit you all, but you know what they say ... ill be back!!!
I am so excited to meet my oldest friend Mary and my rheumatoid friend Amber and there lovely families and ive no doubt some friends along with the way!!
So i am going to be visiting DETROIT where Amber lives and we are definatly going to be visiting an american football stadium and a basketball match and a casino too and lots of other things i am so looking forward to hitting detroit ad surrounding areas. We are thinking of visiting Chicargo for a day how exciting is that? If i have time/energy and money allows we may visit Las Vegas but if not next time for sure!!
Then im heading east and for the pacific ocean! Well not literally haha! Im going to SEATTLE ekk!! This is where Mary lives and the home of super bowl champions 2014, seattle seahawks!! Now a little confession i actually thought she lived in washington DC so when i realised it was washington state and nearer to australia than new york i did have a little pale moment!! Im excitied to be heading for the space needle, seattle wheel, monerail mall and an island im getting a boat too!
So America vickys coming to visit doing it as always the vicky way!! Although the thought of sitting in JFK airport for 6 hours is quite annoying haha!!!
NEVER GIVE UP ON YOUR DREAMS NO MATTER WHAT LIFE THROWS AT YOU BECAUSE YOU CAN ACHIEVE THEM.
lots of love xxx
Now ever since i was knee high i always said "im going to travel mum" and she always said i have no doubt you will, because once i set my mind to something i will get there. Now i had a couple of opportunities to do a world trip but for different reasons, mainly academic, i didnt go. then i got rheumatoid then i got the wheelchair accessory, i thought im never going to forfill my dreams, then i thought hey who you talking to vicky, a defeatist or yourself!
Last year in 2013, i traveled to the cannary islands, a place thats never been on my rador before now however i love the place home from home! Then of course i forfilled a life time dream to visit france, i know crazy right? just one place ive always wanted togo to! I hope to go back to france and explore more of the country and met lots of lovely french people! I have many other european countries to tick off my travel bucket list, its quite extensive! Seeing a camal in May 2013 well i almost ekked with excitment new experiences. Dont get me wrong the UK ius beautiful, England, Scotland, ireland and wales too, beautiful places to visit and you can not beat a sunny day walking along the themes or a cold winters night under the lights of old trafford!
But this summer (as long as my last health check 1 week before travel fit to fly) i am going to conqur my BIGGEST adventure yet i am going to visit AMERICA!!! (i heard those screams!!)
Now i have ALWAYS wanted to visit New York and unfortunatly this trip wont allow me to explore unless you count the 6 hours houled up in JFK airport waiting for my flight home to the UK! I will travel many time zones!!! British summer time, Eastern time (+5), Central Time (+6) and Pacific time (+8).
I have met some wonderful people through my heart and rheumatoid groups with facebook, unfortunatly i wont manage to visit you all, but you know what they say ... ill be back!!!
I am so excited to meet my oldest friend Mary and my rheumatoid friend Amber and there lovely families and ive no doubt some friends along with the way!!
So i am going to be visiting DETROIT where Amber lives and we are definatly going to be visiting an american football stadium and a basketball match and a casino too and lots of other things i am so looking forward to hitting detroit ad surrounding areas. We are thinking of visiting Chicargo for a day how exciting is that? If i have time/energy and money allows we may visit Las Vegas but if not next time for sure!!
Then im heading east and for the pacific ocean! Well not literally haha! Im going to SEATTLE ekk!! This is where Mary lives and the home of super bowl champions 2014, seattle seahawks!! Now a little confession i actually thought she lived in washington DC so when i realised it was washington state and nearer to australia than new york i did have a little pale moment!! Im excitied to be heading for the space needle, seattle wheel, monerail mall and an island im getting a boat too!
So America vickys coming to visit doing it as always the vicky way!! Although the thought of sitting in JFK airport for 6 hours is quite annoying haha!!!
NEVER GIVE UP ON YOUR DREAMS NO MATTER WHAT LIFE THROWS AT YOU BECAUSE YOU CAN ACHIEVE THEM.
lots of love xxx
Flu
I got sick
So after my trip to Manchester to see my team play and get booted out the capital one cup, i came feeling tired as always and nearled ended up in bournmouth!!
Then i started getting a scratchy throat and my voice a bit shacky i thought maybe it was from shouting at football, thrn i started sneezing!!
i woke up saturday with full on flu and with my bad health i knew this wasnt good. i spent the weekend in bed, monday i was on the phone ringing appointnrnts to cancel them and it meant i had to miss a football game that i was so looking forward to.
I went to the doctors a rattly chest (chest infection) and the flu, a course of antibiotics. So a week of rest, which always frustrates me as theres always something i need todo or somewhere i need togo.
I had been waiting since july for physio in my local area and i was due an appointmrnt thursday afternoon. i was feeling a little better so decided to see her, oh i wish i hadnt!!
physio came and did an assessment to get an idea of a programme for me to help my joints and build up my arm muscles. Well with being ill anyway bad decision by me ... not only was i sick i was now in a full flare up!!
We are now monday of a new week, i am still not 100% but better than i was my body is still flarimg and i still have a cough but i must get things done and appointments or ill be two weeks behind myself!
So after my trip to Manchester to see my team play and get booted out the capital one cup, i came feeling tired as always and nearled ended up in bournmouth!!
Then i started getting a scratchy throat and my voice a bit shacky i thought maybe it was from shouting at football, thrn i started sneezing!!
i woke up saturday with full on flu and with my bad health i knew this wasnt good. i spent the weekend in bed, monday i was on the phone ringing appointnrnts to cancel them and it meant i had to miss a football game that i was so looking forward to.
I went to the doctors a rattly chest (chest infection) and the flu, a course of antibiotics. So a week of rest, which always frustrates me as theres always something i need todo or somewhere i need togo.
I had been waiting since july for physio in my local area and i was due an appointmrnt thursday afternoon. i was feeling a little better so decided to see her, oh i wish i hadnt!!
physio came and did an assessment to get an idea of a programme for me to help my joints and build up my arm muscles. Well with being ill anyway bad decision by me ... not only was i sick i was now in a full flare up!!
We are now monday of a new week, i am still not 100% but better than i was my body is still flarimg and i still have a cough but i must get things done and appointments or ill be two weeks behind myself!
Awareness
Six years a go today February 2nd I was 22 years old women, wearing high heels wearing clothes I wanted to, sad because my mum was sick but I didn't know the important of this day. Seven months later I was told I had rheumatoid .. I was 23 .. I had never heard of this disease or the awful things it could do to a person ... Six years on I know about rheumatoid ... I take steroids every day I take chemotherapy once a week I take painkillers every day and I'm not talking paracetamol. Six years on I crnt wear heels .. I crnt wear clothes I like .. My legs don't work .. My hands do fists ..I'm in constant pain .. I need a gel to stop my hips giving so much pain prevent me sleeping. Six years on I suffer insomnia .. Chronic pain .. Depression .. Six years on I'm in a wheelchair ... That's what rheumatoid can do .. They say it's just arthritis though .. What do you think?
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