Tuesday, 24 November 2015


The first time I met Fiona I was fierce teenager and what can I say pretty mad! I had just been transferred from Birmingham children's to Birmingham QE (which was a traumatic event and I was the first one too!) I never liked the QE I couldn't get on with them and I was real mad when they told me I needed open heart surgery, can you Imagine my shock, my children's team had told me I was good to be transferred, well I didn't believe them and demanded a second opinion, of course I did the mouthy teenager that I was! 

That was the first time I met Fiona, I was at London heart hospital, shy but determine for answers. She greeted me with a smile and said welcome to the clinic and if I needed anything let her know. I then saw the cardiologist who agreed with me no surgery needed, so I told her there and then I ain't going back! 

So Fiona and professor deansfield became part of my life from the formidable teenager, we have been through a lot the three of us, break ups, death of my mum, eating disorders, rheumatoid, depression, anxiety and even a few full on breakdowns on the phone!

We have talked for hundreds of hours about things, without Fiona and prof I've no doubt I'd be dead. Why? They know me so well I could ring them for a chat about anything even my eating.

Then today November 24th she rang me up and told me she was leaving the unit, I cried after we spoke for a while, she's not just a nurse she's a friend and someone that I trust.

She said she felt she wanted to ring me rather than just going and I appreciated that. She sats it's not the end, it's not goodbye for ever. But it's broken my heart ...

So professor deansfield don't you be getting no ideas your the only one I have left now from my original team and you rock!

Thank you Fiona and good luck for the future 


Sunday, 22 November 2015

Southampton away 15/16

What a pain, my second trip to st Mary's! Train works going on left me having to spending a weekend in Southampton!!

So I met Dan on Saturday, in redditch to get the train to Birmingham. Then off we went down Southampton! It was a long trip and people didn't make it easy for me! With seating and luggage and so forth!

Eventually arrived in Southampton, then had to put the sat nav on my mobile to get the hotel, poor Dan had to push me up a massive hill!! We made it to the hotel checked it, dropped stuff off, charged phone then off to show Dan Southampton by night! Was lovely to go down by the boats.

Staying at the jury's inn Southampton, the room was ok for the wheelchair but it took a lot to get into the toilet, not the biggest, although gave for some laughs! 

The next day, after about 45 minutes that's how long it takes these days to get a wheelchair taxi and we made it down the the grand hotel Southampton. They customer service was exceptional. The room was fantastic with views to the harbour.

We had lunch at the hotel as didn't fancy the walk into Southampton after all it was cold and time limited, plus we had to go to football! 

Lucky we managed to get a taxi to the ground, Dan had never been before so we took some pics outside, before finding the away end.

Now I've been to Southampton  before I also find the stewards really helpful and supportive and today as no exception. We found out seats and I chatted with some of my friends the  game began and it was a good!  

After the game we ended up walking back to the hotel and my legs were really hurting it wasn't the best, but we got there!

We had an early start on Monday and two trains. I was glad to see my dad and brother on Monday as I was really tired! Thanks for coming Dan great weekend down in Southampton :)

Thursday, 5 November 2015

It's been a long road

Seven years ago I was diagnosed with a condition that I'd never heard of, rheumatoid arthritis, seven years ago I didn't know what it was or how it was going to affect my life.

At 22 I had my whole life in front of me, a career, a partner, a life ... High heels, coats, shoes and more clothes than I probably needed.

Then my mum passed away of cancer, it was the worse thing you can imagine, I lost my mum, my best friend. But I also lost my rock.

Then I got rheumatoid arthritis and my life fell apart, suddenly I'd lost my support, suddenly I'd lost everything I knew.

It wasn't just rheumatoid, it was the depression, the anxiety, the eating disorder the loss of my self esteem and confidence.

As the condition deteriated my phone stopped ringing, the texts stopped buzzing. Friends were gone, they no longer wanted to be part of my life. It hurt it was so painful.

I spent two years alone, scared to go outside because I was ashamed of me, the condition, I tried to put a smile on my face but it wasn't easy todo that alone and no one understanding. That's when I started my blog to help me get things out.

Then my life changed again, friends came back, they became true to me once more, not the same people but new friends in my life, I won't name you because you should know.

Then my life changed again, I got this confidence that I'd forgotten I had for so very long, I went back to football, something I loved but I didn't think I'd go back to. My life got better because I had a purpose again football was my purpose.

With that, came new friends, more confidence, traveling up and down the country in my wheelchair, with my new friends, meeting them at away grounds, or chatting on Facebook, I thank them for that because they don't know what they did for me.

Now I'm in a different place to what I was, I'm not better, I'm not ever going to be better or the same person I was at 22, for a start I crnt wear heels. But I can say that life is different, it's a new life a life I never expected.

Take care of your friends they will help you through the difficult times, new ones are always there waiting for when your ready, they may not be physical but online buddies are just as good 


Sunday, 1 November 2015

Manchester with the little kids!!

So when we went to Lego land at the start of the summer holidays, I told the girls I'd see them before they went back to school. So in the first week of September, I took my cousin and the girls to Manchester! Now as you probably know if your a regular reader, I'm a man united fan ... So what did I do ...

I took them on a tour of mufc! We went round the museum first, the oldest was loving the trophies! Then we went on the tour, youngest didn't like it for some reason, but the oldest loved it, I'm sure she's a red now! We had lunch in the red cafe and the oldest wrote Rooney on her menu! The food was nice!

We then checked in to the hotel. I had a little nap as I was tired!! The girls were happy music on dancing around the apartment!

We then went for some food down stairs! Chatting and the girls dancing! Was funny!! Day one done!

Woke up early the next day! Then off to legoland adventure centre at the Trafford centre, which was good for the kids, lunch at McDonald's! Then a little show of the Trafford centre! They even got to ride on a ride outside! They had a great time!

Back in the car and homeward bound! We got stuck in a traffic jam and ended up going through the lanes! That was an experience I tell you! 

Eventually home and lovely cuddles with pets!

Thanks for a great weekend girls, love you both lots and my lovely cousin of course xxx

Sorry no pics ... Protecting the girls 

Sunday, 18 October 2015

Swansea away

So unfortunately I've fallen behind on my blog as I haven't been feeling too well with the flu and on top of that I've been following my club Manchester United!

So as Uve  previously read I went to Brugge and a few days later I was back off on my travels! First I had a few days in Kent, although I basically slept those days away! I did go out on the Saturday and visited the front for a little walk to get my postcard and magnet. In the evening we went to see the fireworks! Well that was funny it was beautiful to see over the sea but as the last one left the air the rain came die, I got soaked!

Sunday morning came, I had to get up early ready for the trip across to Wales! Pack the car get ready and we were off back on the road! My joints were hurting and I wasn't feeling the traveling!

I started to need the toilet and we had to come off and I swear we went about 10 miles out of way, sorry! I used the toilet and was annoyed to find out I couldn't use the cash point or get any white chocolate! The new bridge was closed so we had to go over the old bridge!

The traffic going through Cardiff was an absolute nightmare in fact most of the trip in Wales was a traffic jam, or that's how it felt, when I was still quite tired! We eventually arrived at the Liberty and found some parking. Partly my fault because I'd forgotten to book parking with the journey to Brugge and the planning involved it just didn't come up in my head until Friday morning!!

Anyway after parking and walking well being pushed across to the liberty! This was my first trip to the liberty! We had to walk around the ground to the away end.

Upon arriving at the away end we were greeted by lovely stewards who pointed us in the direction of the disability steward. She took the tickets and scanned us in, we then went into the stadium she told us when to get th lift. We went straight up and another steward accompanied us then another met us at the top and showed us to our space and seat. Fantastic view, see below,

The lady from the entrance came up and said that at ht she would Come and get us drinks if we wanted anything. During the first half she came and said there wouldn't be any drinks as they were closing the bar! 

At half time, I used the toilet which was a good size not the best layout but not the worse I've seen in the premier league! 

The game wasn't the best as we lost. However I have to admit the ground was superb for disabled fans, one of the best in the premier league in my opinion.

The journey home was really long because my joints were really hurting and i just wanted to get in my own bed!

I got home and I was really happy to see my dad and the dog! It was a really great week and thanks to Andy for helping me and making it possible.


Wednesday, 14 October 2015

Acceptance and friendship

Apologises everyone, I meant to blog yesterday but I spent the day at the docs and a bit grumpy after seeng off a nasty chest infection and the flu I have acquired tonsillitis .. You could not make it up!

Anyway two blogs in one today that kind of interlink so keep reading to find out how ( the explanation will be between the both!)

When I was diagnosed with rheumatoid in 2008, I didn't realise the severity of how fast it was going to change my life, I was 23 don't forget! I guess I was a bit Nieve as well, I mean what was this? And arthritis but my nan and dad have it and they are ok! Was some of my Initital thoughts .. Well after I had stopped crying and got off the pavement, that I'd decided I'd fall on to with my tears flowing.

The thing is I didn't understand what rheumatoid was, what rheumatoid could do, I wasn't give these tools by any of my medical team, I just knew they felt bad for me! I wasn't ready to ask questions because I was still in a state of shock after loosing my mum and then getting sick, I mean come on these are major life changing things going on!

So it took me a long time to accept I was really poorly with another chronic illness when j say along time I don't think I've accept this disease party from lack of info at the Start, I think if you are informed properly you will no doubt accept it easily.

7 years on ... I have more information and understand the disease and have many pals with rheumatoid and other types of arthritis. My top tips for acceptance

1. Ask questions from medical personnel 
2. Reach out to arthritis charity's like arthritis research uk and some have specialist disease based charities like national rheumatoid arthritis society. 
3. Talk to your family
4. Talk to your friends 
5. Seek out other suffers who will understand your worries, have been through the medication journey and will understand not being able todo what you use to!

My brain still thinks it can do everything 23 year old Vicky could without arthritis, but it crnt nasty brain trying to trick me haha!! 

 So what has acceptance and friendship got to do with each other. Firstly your arthritis pals will understand you and have to a level accepted this disease which helps you to keep going at times.

But then your "normal" friends need to understand the disease and also ACCEPT you are the same person who laughs and jokes with them but also realise your body isn't what it was and you may need to sit down more while out or need pushing the wheelchair, but that's a whole other level of acceptance for both of you! 

Friendship, let's face it we all need friends. I've a mix bag of friends lol from many walks of life male and female.

The thing is though my friends are all relative NEW friends well some are 7 year sting now! Why is that I hear you ask? Because people couldn't adjust to me suddenly needing the wheelchair and not being as independent as I use to be (even though I travel most weekends to the football lol) it was hard for them to seeing the person they knew changing but of course I was changing j was suddenly motherless and arthritis was here. Then the wheelchair came along and people disappeared even more, it was deverststing.

However on a good point, it's not all bad, I have some great friends who I have met because of arthritis  and life long heart friends, I guess us sick people stick to each other!! I won't name names but you know who you are! 

Then I have my other friends who have other chronic illnesses who get that frustration, of being too ill to go out on a night and sitting at home watching the pics on social media, while your sat with your hot water bottle and thinking wish I was there but oh this is so warm, it's cold out there, love you guys!

Then we have my normals LOL who have accepted the mouthy Burnett with her crazy dog and annoying joints lol! We just get by one way or another! 

Then there are my football family! Who have accepted me as me wheelchair and arthritis and all, we laugh joke, shout at the game, and keep in touch, we enjoy a chat a good laugh. But they have accepted me for me, even if we do disagree on players performance because that's the thing about football it's about opinions. Plus I mean we have all had some laughs from Cambridge away to Liverpool to Newcastle and Brugge and everything in between! I know they have always got my back which is a good feeling

So I'll finish off here, by saying learn to accept your new body's limits and remember it's not just you trying to accept the change it affects you all. I'm lucky I've managed to get a new group of pals and others have managed to keep hold of there old pals and extended! 

Acceptance is a big thing with arthritis but so is friendship.

Have a good day girls and guys xx

Monday, 12 October 2015

The facts

So I thought I'd start Arthritis week with some simple facts about me about my arthritis journey

Name... Vicky
Current age .. 30

Age when diagnosed .. 23
Diagnoses .. Rheumatoid arthritis 

Year I start using my wheelchair .. 26

Why they think I have rheumatoid .. Because of the stress of loosing my mum which happened in August 2008 I started showing symptoms shortly after 

What doctors first said to me

Cardiologist .. "I think you have rheumatoid arthritis Vicky, I hope you don't"
GP ... "I really hope you don't have it because you have enough on your plate"
GP ... "I'm sorry you have rheumatoid arthritis, it's going to be a long journey"
Rheumatologist "you have it, live with it"


GP "Uve had a bad hand delt Vicky"

Responses of family .. What is it? it crnt be that bad?
Friends ... What is it? 

My response " why is this happening to me, I have my whole life in front of me"

Thanks for reading part 1

Check out arthritis research uk this week for stories of many other suffers